Insurance Stories Causes

Type 1 Diabetes Awareness

Raising awareness for Type 1 Diabetes, correcting misconceptions, & bringing unity to the type 1 community

Stand Up To Health Insurance Bullying / Check Out The Causes At The Bottom Of The Page

 

All people with Type 1 Diabetes should be able to get health insurance at no cost.  Nobody with T1 should have to fight to get insulin just to stay alive!!  Free clinics exist in some place but most of them are not up to par.  They sometimes have insulin but no syringes, they may be able to give a meter, but no test strips.  What good is insulin when you can’t get it into your body?  What good is a meter without test strips?!  Something is wrong with the system.

People with T1 should not have to have to go through a rigorous appeal process with the health insurance companies before they get approved for the things they medically need, things that help keep them alive!!  If the doctor says the patient needs x amount of test strips there should not be an issue, but so many people must appeal this first before it MAY get approved.  CGM’s too, if a doctors says the T1 needs a CGM, they should not have to appeal it first.  Same goes with an insulin pumps and all the other supplies that go along with it.  It is ridiculous that this is the way things are.  It’s like the system is set up to make you jump through hoops in hopes that you will just give up.  It should not be this hard.  PEOPLE WITH TYPE 1 DIABETES DESERVE HEALTH INSURANCE AND SHOULD NOT HAVE TO FIGHT OR PAY ANYTHING TO GET IT.  The new “plan” that is in place says the co-pays will not be “too much”.  Well, what is too much?  To me, $10 for each supply for an insulin pump plus insulin is TOO MUCH.  When the health insurance companies require co-pays it feels like they are punishing the person for having type 1 diabetes!!  Type 1 Diabetes can not be prevented nor can it be cured.  Do the people that run these health insurance companies know someone with T1, does one of their family members have type 1, do they know anything about it?  Do they know what it feels like to have to check your blood sugar in the middle of the night or for a parent, husband, or wife to check their loved one’s blood sugar in the middle of the night?!  Do they worry they may not survive because they can not afford their insulin.  Of course they don’t!!  Here is a list of some ways to Stand Up To Health Insurance Bullying..

1) The words “medically necessary” are very important and the things people with type 1 diabetes need are “medically necessary” – all the insulin, test strips, all the supplies that go with insulin pumps and multiple daily injections.  If it is denied via the health insurance company ALWAYS fight it, appeal, get the doctor to write a letter, write a letter to the CEO of the health insurance company, write a letter to your local political representative.  Make some noise, fight for what is right.  Do not accept no as an answer because type 1’s NEED these things to stay alive and keep their numbers in good control to prevent future complications.

2) Check with your local office and see if you qualify for Medicare or Medicaid.  Some Type 1’s qualify and some do not, which does not make sense.  Type 1 Diabetes is Type 1 Diabetes regardless if the person’s name is Bob, Jim, Julie, or Mary.  Some even get on these programs without having to have “diabetic complications” as they should because if it is not controlled now THE PERSON MAY VERY WELL GET COMPLICATIONS.  

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When I went into the hospital for the first 7 days in 1980 and had to learn about how to take care of myself, I thought I only had to do it for 7 days, for real.  I was about 16 years old.  When my doc said you’ve got to go to the hospital for 7 days, I really thought my diabetes would only be for 7 days lol.  The day I was leaving the hospital, the nurse handed me a box of needles and I asked what they were for, she said your insulin injections.  I said, for what I did my 7 days.  The nurse just sat back and said, son you didn’t listen, you’ve got to do this all your life.  Of course I acted like I was just kidding and walked away mad and embarrassed but I’m still here fighting it.

-Jeff, USA, Type 1 Diabetic (diagnosed at 16 years old in 1980) 

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I play volleyball. I hang out with my friends. I do all of my schoolwork. I can walk through my school and look as normal as everybody else but I have a little tube that people wonder what it is. I have been a Type 1 Diabetic for 3 ½ years, it will be 4 years on April 17th. After four years, I honestly try to remember what life was like without diabetes. It has changed my life forever. I can remember that day I was diagnosed but it seems everything before that is completely blank, as if I am not supposed to remember. There are days that stick out in mind now, the days where diabetes drives me over the edge. Simple days like just going to the movies can totally be ruined since you accidently left your pump at home after taking a shower. Therefore, you end up missing your movie and you feel even more frustrated with yourself. Or the times where you have ketones, you try everything to get them to go away but they won’t. Diabetes equals one thing in my mind, frustration. As you seem to figure out your latest patterns, diabetes throws you this massive curve ball. Your blood sugar begins to drop rapidly for no reason or they shot up. It takes days to figure out why and then you fix it. Even simple times like going to a Major League baseball game. You want to see the first pitch or the starting line up but you cannot, you have a low blood sugar so we have to go find food. Those are some things I can remember now; of course, I have the fun memories with my friends but what about all of the other times? On my birthday, I went somewhere with my friends and my blood sugar dropped. They all freaked out. I do not handle people freaking out about me very well, I know what I am doing and that is how I reassure myself. I know what I am doing. These last four years has taught me a lot. I used to be the kid who drank soda, now I am that health freak and looks at carbs. I feel like diabetes changed me as a person, I became so much closer to my mom as she is my safety net and she is the one who does my sites, she also knows me inside and out. I was able to go to this special camp for kids just with diabetes and I feel like all we talked about was diabetes because we all understood what the other was going through. Yet, I hope one day that I am not going to diabetes camp anymore. I hope I am going to a camp where we all used to have diabetes. I am praying for the cure but until then, I am going to be that girl with a big smile on my face even though everything going on in the inside is hard and frustrating, but I am going to make it through. I am going to stay strong and be the best diabetic I can be. 

-Jordan, USA, Type 1 Diabetic (diagnosed at 10 years old in 2008)

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My name is Pebbles and I’m 46 years old. I have been living with type 1 diabetes since 2007. Some of the triggers that helped screw up my immune system are mumps, measles, chicken pox and MRSA.

But I was not diagnosed with type 1 at first. I had a history of diabetes in my family and so I figured that I needed to get checked. My blood glucose level was over 300 and was given pills cuz the doctor thought I had type 2 due to me being overweight and had a strong family history. Not even 6 months later I got a bad infection, blood glucose levels were out of whack and I wounded up with MRSA and a spinal cyst. In the hospital I went and sure enough, I had a high white blood count, my c-peptide levels were 0.5 ng/dl and I had antibodies attacking my pancreas…a clear diagnosis of type 1 diabetes.

I am on Multiple Daily Injections, using Humalog 3 times a day and Lantus once a day. I watch what I eat and do activity at least every day. I have a very loving and supportive family and friends. I also have nerve pain-mostly in my feet, legs and back.

-Pebbles, USA, Type 1 Diabetic (diagnosed at 43 years old in 2007)